Celiac's Disease

Wow, what an interesting month it has been. Both my kids have had tummy problems so I decided to have their blood checked for Celiac's Disease just because it runs in the family. I basically wanted to rule it out, and didn't really think it was possible for either of them to have it. Boy was I surprised when the Dr's office called me and gave me the crazy news. It is interesting that a phone call that lasts all of 2 minutes can change your life so much. Celiac's disease sounds like he is dying, but basically it is an allergy to gluten. Which is a protein in wheat, barley, and rye. So basically everything has some form of wheat in it. Cereal, bread, pasta, chicken nuggets, creamed soups ...basically everything. I have had to start over with foods in my house. 2 months ago I wouldn't have believed that I could bake bread with out wheat flour. Who knew that you can make bread with rice flour?
It is definitely much more complicated cooking, and a little more testy. But possible. There are so many resources online, thank goodness! I couldn't have done this 20 years ago. I still don't want to do it now, but when your 4 year old can't eat anything out of a box you have to rethink your dinner strategy. Everything has to be made from scratch. There are more gluten free options at the store, but most of them are very bland and the texture is very gritty. Not to mention the cost. We are grateful that it is not a life threatening problem. It definitely has changed our lives. No more eating out with the kids. No more McDonalds trips. No more pizza on weekends. And much more planning and time spent in the Kitchen. I will always have to pack a lunch for school.


But here are the pros:

Logan is feeling better, no more random vomiting.
He has much more of an attention span, he did a puzzle for the first time in his life, sounds pathetic I know, but the kid just wouldn't sit still for 5 minutes. Now he will sit with me and work on letters, do a puzzle, or draw and paint.
We are learning some really interesting things, and have found some new yummy foods.
I am being forced to cook. (I was cooking before, but this makes me plan ahead)
We are eating healthier.
We are much more aware of the foods we eat and the health benefits of them.
No more baked goods at our house. Not really a pro, but it will help me get thin.


I still feel like this is just pretend and everything is going to go back to normal soon. But I guess that is how life is with most trials. This one I won't be able to ride out though. It is forever and life altering.

I try not to think of all the cons. Sometimes it is a little overwhelming. We are going to the allergist this week to see if there are any other allergies. Which is very likely. Most children diagnosed with Celiac's disease have other allergies. He has still been having a couple problems so we are hoping that he doesn't have an intolerance with dairy. We could definitely use some prayers because I am not sure I can handle dairy on top of gluten. Nor could our budget. I will let you know next month.

I am trying really hard not to make him feel too different at our house, and to make it so he doesn't have to ask me if he can eat something..."mom is this gluten free?" has become a common question. I want him to know our house is a safe haven for him to eat and be normal. It just requires a lot of time in the kitchen and a lot of dishes. It is a good thing I love him. Because it makes it worth it.
And no, he doesn't always get heart shaped pancakes with pink syrup. This was Valentines Day breakfast. They were very yummy gluten free buttermilk pancakes with buttermilk syrup.

8 comments:

Jennifer said...

Shasta,
Loved the post. Celiac is becoming much more commonly known for so many people. I am glad that you are taking it in stride and working so hard to make it feel normal for him. You are such an amazing mom and person!

I know several people who have Celiac's (even a few in our ward) so if you want names so you can talk about it with them, let me know. Hope the next appointment goes well.

Love ya!

Jenn said...

I know quite a few people that are struggling with Celiac's Disease too. My little sister does and is allergic to milk, eggs and many berries too - it can be a difficult way of life, but it's lucky you've learned so soon so it isn't as huge of a lifestyle change for Logan. I thought of one more pro for you, If there were ever a natural disaster knowing how to cook from scratch would really come in handy. :)

Baumgartners said...

Wow! That can be so difficult to go through such a life altering change. It sounds like you are doing great learning how to deal with it and hopefully Logan is coping okay too! Our prayers are with you and hope he doesn't have other complications along with it. I am impressed by your strength and your faith (as always). We just got our March Ensign and there are some really good articles about trials and adversity. They really helped me this week (check out my blog for details!) - maybe they will help you as well.
Hang in there!

Scott and Siobhan said...

I know how you feel I don't have it but my brother had it all grown up if you do have any question you can ask me or if your in delta just stop by Service drug and talk to my mom see knows alot. you can always get them rice cake they have alot of different kinds now.

Burke Family said...

Wow Shasta. I am so glad he is feeling better. It is such a HARD adjustment at first and I promise you it gets easier. And there are actually a lot more restaurants that offer a gluten free menu now, so that is nice. I make a lot of my stuff out of millet flour. When I make CC cookies my kids don't even know the difference. It is much cheaper if you have a grinder and can grind it yourself. Also, Tom Sawyer flour is good, you can get it online. I am waiting any day for one of my kids to start showing symptoms, and I am sure things will get much trickier then.
Your kids are adorable!! I am so glad to see your posting more. Amber is thrilled living close to you!

Burke Family said...

Wow Shasta. I am so glad he is feeling better. It is such a HARD adjustment at first and I promise you it gets easier. And there are actually a lot more restaurants that offer a gluten free menu now, so that is nice. I make a lot of my stuff out of millet flour. When I make CC cookies my kids don't even know the difference. It is much cheaper if you have a grinder and can grind it yourself. Also, Tom Sawyer flour is good, you can get it online. I am waiting any day for one of my kids to start showing symptoms, and I am sure things will get much trickier then.
Your kids are adorable!! I am so glad to see your posting more. Amber is thrilled living close to you!

Heather said...

Hey Shasta! I am so glad to hear you found out what was making your little guy sick and that it was nothing more serious. Although it is a lot more work, it's a great example to me to see you being positive about the situation. :) I still think of you guys often and hope all is well with you and your little family.

Alecia said...

Glad you are so talented to be able to change like you have and make it a positive thing for your family. Your kids are so cute!